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Places to Go:
The Call is in.
Nurse Pregnancy Department just called back with “good news”. My beta is 58. Um. ok. I asked if that was a bit high for this stage of the game and she said, I shit you not, “Well it is less than the last beta you had. All we are looking for is that it is going down.” It could, in fact be another month (or two!) before it “resets” to zero. Holy hell. I had no effing idea it could take this long. I am to have repeat betas every week until it reaches zero. Great- so I get to spend my small FET fund on getting motherfucking repeat betas. At least this validates my feeling knocked up for all this time.
Yay- I’m not crazy. I just have crazy female bits.
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36 Responses to “The Call is in.”
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Effing hell, that’s a slow fall. How annoying.
But I still think they seem a bit laissez-faire. Don’t they care that it’s been 6+ weeks? Shouldn’t it be less? Shouldn’t they make sure there’s no ectopic?
Good grief, what an annoying nurse! And really, if they’re not going to do u/s or something to make sure you’re “clean” inside, you could go for betas every 2 weeks instead of every week; that was my schedule. Then again, I’d already had a clear u/s. Ehhh, take my ass-vice with a grain of salt.
That absolutely sucks beyond belief. I am so sorry, Calliope.
Argh… Talk about a woman in need of, never mind sensitivity, SENSIBLENESS training.
That is a slow fall. I hate that you’re having to pay for these damn things - my insurance doesn’t cover maternity, so I am painfully aware of the cash cost of a Beta.
As it should take about the same time to come down as it did to go up… Hmmm… I might want to get an ultrasound (those were cheaper for me than the Beta) and if there’s nothing switch to every 2 weeks. But that is my random take on it.
Ugh.
(((hugs)))
ugh! I’m glad you have your answers… but I agree too w/ some of the other commenters: save your moola and go for fewer betas. UGH!!!
Well at least you are getting some answers… but I had no idea of the timeline either!
Damn it! And you have to pay for the betas?
Oh, it’s just so frustrating.
Sorry you have to go through all this.
It does seem like a slow drop. I agree with all who suggest sonogram.
But it really does explain your emotions of late. Who would’ve thought….
I’m not surprised… when I had my ectopic I learned from other bloggers that even after taking drugs to, uh, “resolve” an ectopic, the betas might only come down 15% per week. It may yet take several weeks. Which sucks, of course, but from what I hear is normal. Sorry your medical care is so bad.
Good news?? Is she effing serious? What’s so effing “good” about it?
I really hope it falls quickly and soon, for your sanity and your wallet.
Ugh. What a mess. You probably could go every other week BUT if it doesn’t continue to fall (at this point I would look for AT LEAST a 10-15 pt drop in a week, twice that in two weeks) you need to push for a consult with an OB.
That woman sounds utterly inept and insensitive. Ugh.
I’m so sorry this has been prolonged for you. You deserve to be able to move past it all. xoxo
Dear lord, I had no idea this was so damn complicated. What did they do back in the old timey days?
This has been one hell of an education…you should write a book!
m.
Jeesh, the fun never ends. So sorry.
On another note, I’m de-lurking because I have something you might be interested in. It’s a clinical study which is currently recruiting about 100 women under 35. It includes all stims, b/w, u/s, er & et. plus 1 fet. The only thing out of pocket is travel, lodging, and $20 for antibiotics. I just got pre-approved today. Please shoot me an email if you’d like the link.
I’m sorry you are having such a tough time. I had a similar stretch of awful last fall. It was a natural cycle though so the treatment was a little different. I got a +HPT on 8.25 at 4w4d. My beta didn’t double the following week and I started spotting. I continued spotting for a week as my beta fell slowly. At about ten days after the first spotting (which was also the day the beta rose but didn’t double), I bled like a period for 4 days. I continued doing betas every four days while I continued spotting. My betas bounced around (up and down) for weeks before I cried uncle and got a shot of methotrexate. In all, the barely there pg took 6 long weeks to resolve even with a shot.
I’d want an u/s at this point and if there was anything left in the uterus I’d want something done to resolve it. Good luck!
Jeus f*cking Christ. Enough already. This is some bullshit, babe and I am so, so sorry.
I hate that nurse. Now that I’m thinking about it, I had an ectopic that was treated with MTX shot, but ruptured anyway, so I also had to have surgery in which they removed my whole damned fallopian tube and it still took about 8 weeks for me to get back to 0.
Sorry you’re dealing with this. Hopefully a zero is near and you don’t have to waste too much money on betas.
Oh darlin’, how nasty. I’m sorry my love.
Could you just alternate peeing on sticks with blood draws? I’m joking, mostly.
sorry, but that just sucks! especially that you have to pay for a beta every week!!! wish I could offer more than just my wishes for a speedy fall in numbers.
Oh that stinks! I wish it had been less than 10, but at this point, I can only hope it goes down quickly so you don’t have to go through this week after week.
crazy female bits! shall we start a rock band?
why don’t you bargain with them for every two weeks… I mean hell why shell out the money and the extra blood?
I’m sorry. This has to be frustrating to the extreme.
sucks sucks sucks sucks. why can’t anything just be easy for a change? I’m so sorry. ~luna
While I admit that the nurse’s attitude was a bit cavalier, I just wanted to let you know that it took almost 2 months for my beta levels to be considered negative. We found out we didn’t have a heartbeat on May 11, had a D&C on May 14, and I didn’t get a negative beta until the week of July 4th. It truly sux….I’m sorry you’re going through this.
As long as it’s going down, do you have to go back every week? I mean, you’ve gone this long without one and it hasn’t made a difference. Is there any actual value that you’ll gain from the tests? Cause, otherwise, I’d view it as a waste of good FET savings.
So sorry. I know how frustrating this is. It just sucks. It’s frustrating. It made me feel like I couldn’t even *miscarry* right. It’s getting lower. Hopefully it will really start dropping so. I’m just so sorry.
Oh Cali…I’m so sorry. This just isn’t fair. The whole thing sucks. Huge hugs.
Shan
Many hugs to you. I’m so sorry it just keeps sucking.
I am so sorry you are having to go through this. And thanks for the thoughtful words.
So sorry this is still going on and that it’s going to cost you so much time and money.
What a PITA. My beta fell super slow like that with the first deadbabyepisode. It was something like 4000 in mid-december and took 6 weeks to be less than 10.
((hugs)) it sucks serious ass, and the money part is the worst.
I also don’t see any reason to have weekly betas if the only thing they’re going to tell you is to wait and see. I mean, you went how many weeks without a beta? You’re in control of your medical treatment and you have the right to do - or not to do - whatever you want.
It’s weird that your insurance won’t cover the betas, BTW, especially since the doc is requiring them.
I’m so sorry you have to deal with this lingering issue. Please don’t let it get you down. You’ll get through this too.
xo
Firstly I wanted to say thank you for your support and your encouragment. What a wonderful ‘not alone’ feeling.
Secondly, and most importantly, I was reading your Blog, and I am just so sorry for all your shit. For everything.
Lianne xxxx
Holy hell is right!! I’m so sorry that you have to deal with the miscarriage lasting longer than the pregnancy nonsense. That is just such a cruel joke…
i agree–why bother getting the betas??